The first UK FA Standards of Care Guidelines have now been published. This significant milestone has been reached through the efforts of specialists  in the UK FA Clinical Network, with additional contributions from specialists in the US and Germany. The document is edited by Mr Thomas Carroll and Prof Ajay Vora. download here (500Kb pdf)  or here (1MB Word 2003 doc). (Available shortly in hard copy on request).

The document will serve as a benchmark for provision of care, clinical audit, and the UK and Ireland Fanconi Anaemia Register (UKIFAR) project.

It will also be of interest to FA affected families, to discuss with their clinicians.

A special thanks to Thomas Carroll without whose tireless efforts this groundbreaking document would not have been produced.

This entry was posted on Tuesday, March 3rd, 2009 at 10:02 pm