We are now on the countdown to raising our first £100,000, with only £6000 to go!

This amazing figure, achieved in less than two years, is due to the magnificent efforts of our FA families and friends across the UK and Ireland.

This has enabled us to publish the first UK Standards of Care, hold Clinician and Family meetings and provide over £30,000 for UK FA research. We will also shortly be funding an international gene therapy workshop and making a further significant donation to UK FA research.

Thank you everyone!

This entry was posted on Saturday, July 17th, 2010 at 9:22 am