Pauline Thaler at the US Fanconi Anemia Research Fund is working on updating their Family Directory for publication in early 2012. This is a worldwide family directory which allows people to to identify and contact other families in their area. Fanconi Hope does not currently maintain a separate UK Directory.

If you would like to be added to the list please contact Pauline  by phone or e-mail by Dec 23rd 2011 to ensure your inclusion in the next update. However, if you miss this particular deadline you can submit your details at any time since the directory is updated on a regular (at least annual) basis.

This entry was posted on Wednesday, December 21st, 2011 at 7:01 am