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How to Donate to Fanconi Hope: Online: Single payments or direct debits. Pay by credit/debit card or Paypal. DONATE NOW. (You can also GiftAid online donations increasing their value by 28% at no extra cost to you). By Post:  Please send cheques payable to ‘Fanconi Hope’ to Fanconi Hope, Sandown Crescent,  Cuddington, Northwich, Cheshire, CW8 2QN. By using […]

International FA Gene Therapy Working Group – 5th Meeting: 2014

The 5th International Fanconi Anaemia Gene Therapy Working Group Meeting, co-sponsored and organised by Fanconi Hope and FARF, and chaired by Prof Jakub Tolar, was held on 16th Oct 2014 in Milan, at the Sheraton Milan Malpensa Airport Hotel & Conference Centre.     Agenda Fanconi Anemia Gene Therapy International Working Group 10/16/2014 10:30 – 14:30 PM    Sheraton […]


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International FA Gene Therapy Working Group – 3rd Meeting: 2012

The 3rd International Fanconi Anaemia Gene Therapy Working Group Meeting, co-sponsored and organised by Fanconi Hope and FARF, and chaired by Prof Jakub Tolar, was held on Oct. 25, 2012 in Versailles, France and included 19 representatives from the UK, US, France, Spain, Italy and Germany. The UK was represented by Prof Bobby Gaspar from the […]

Call for Participants in Study of Early Detection of Oral Cancer in FA Patients.

If you or someone in your family with FA is diagnosed with oral cancer, aged 13 or older, please consider participating in this research study. The following text has been produced by the Fanconi Anemia Research Fund. The Fanconi Anemia Research Fund recently approved a proposal submitted by a researcher at the Dental Research Institute […]

International FA Gene Therapy Working Group – 2nd Meeting: 2011

The Working Group Members The 2nd Meeting of the International FA Gene Therapy Working Group was held at the FARF 23rd Annual Scientific Symposium in Barcelona on 20th October, 2011 with the meeting co-sponsored by Fanconi Hope, FARF, and the Spanish group, the Centre for Biomedical Network Research on Rare Diseases (CIBERER). The meeting was again ably chaired […]

About the Charity and Progress to Date

The Fanconi Hope Charitable Trust Three parents of affected children, Thomas Carroll, Richard Kawalek and Bob Dalgleish started the Fanconi Hope Charity in 2008, to fund research into this disease, to help engender consistent best practice treatment across the UK by initiating and running an NHS FA Clinical Network and to provide much-needed support to […]

International FA Gene Therapy Working Group – First Meeting: 2010

International Fanconi Anaemia Gene Therapy Working Group –  “a real platform for the accelerated development of collaborative clinical studies.” Reported in Nature: Molecular Therapy “Stem Cell Gene Therapy for Fanconi Anemia: Report from the 1st International Fanconi Anemia Gene Therapy Working Group Meeting” : Jakub Tolar Full paper Report from First Meeting: November 16th […]

And a Big Thank You to …

… all those who have made private donations to the Charity and to the following for their magnificent fundraising activities:-  (Apologies to other 2014 fundraisers, I will catch up with the list soon!) HMS Excellent,  Portsmouth for adopting us as their charity for 2013-2014  and presenting us with a cheque for £3513 (Jun14) (See Navy News Article) […]

How You Can Help

We aim to build up a register over time of all those affected in the UK and Ireland. Please register your interest by e-mailing, calling, or writing to us (See details below).  ‘Membership’ is free and we will endeavour to keep you informed of developments in the future. Please publicise the organisation among other FA […]