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About Us

More about Fanconi Hope Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:- To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with […]

http://www.fanconihope.org/home/about-us/

Fanconi Hope Announces Appointment of New UK FA Coordinator

  Fanconi Hope has taken an important step forward in support of improved care for the Fanconi Anaemia (FA) community in the UK by funding a long term study through Manchester University called: “Observational study for long term health implications of individuals affected by Fanconi Anaemia”. One of the first activities in this study, which started in […]

http://www.fanconihope.org/2016/07/18/fanconi-hope-announces-appointment-of-new-uk-fa-coordinator/

Our UK FA Liaison and Research Coordinator

Fanconi Hope has taken an important step forward in support of improved care for the Fanconi Anaemia (FA) community in the UK by funding a long term study through Manchester University called: “Observational study for long term health implications of individuals affected by Fanconi Anaemia”. One of the first activities in this study, which started in May […]

http://www.fanconihope.org/home/families-and-affected-individuals/uk-fa-liaison-and-research-coordinator/

Links for Clinicians and Researchers

UK and Ireland Clinical, Research and Health Organisations British Society of Haematology British Society for Genetic Medicine Clinical Genetics Society Association of Genetic Nurses and CounsellorsNational Cancer Research Institute UK Cancer Genetics Group Irish Society of Human Genetics British Society for Gene and Cell Therapy British Association of Plastic Reconstructive and Aesthetic Surgeons Human Fertilisation and […]

http://www.fanconihope.org/home/links/