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International FA Gene Therapy Working Group – 5th Meeting: 2014

The 5th International Fanconi Anaemia Gene Therapy Working Group Meeting, co-sponsored and organised by Fanconi Hope and FARF, and chaired by Prof Jakub Tolar, was held on 16th Oct 2014 in Milan, at the Sheraton Milan Malpensa Airport Hotel & Conference Centre.     Agenda Fanconi Anemia Gene Therapy International Working Group 10/16/2014 10:30 – 14:30 PM    Sheraton […]

http://www.fanconihope.org/clinical-network/international-fa-gene-therapy-working-group/international-fa-gene-therapy-working-group-5th-meeting-2014/

International FA Gene Therapy Working Group – 2nd Meeting: 2011

The Working Group Members The 2nd Meeting of the International FA Gene Therapy Working Group was held at the FARF 23rd Annual Scientific Symposium in Barcelona on 20th October, 2011 with the meeting co-sponsored by Fanconi Hope, FARF, and the Spanish group, the Centre for Biomedical Network Research on Rare Diseases (CIBERER). The meeting was again ably chaired […]

http://www.fanconihope.org/clinical-network/international-fa-gene-therapy-working-group/international-fa-gene-therapy-working-group/

Other Recent Research

Increase in Oral Cancers Linked to HPV (2011) The human papillomavirus (HPV) is contributing to the growing number of  head and neck cancers in the United States, thumb according to a new study  in the Journal of Clinical Oncology. (oct 11) http://thechart.blogs.cnn.com/2011/10/03/increase-in-oral-cancers-linked-to-hpv/?hpt=hp_t2 The Role of Fanconi Anemia/BRCA Genes in Zebrafish Sex Determination (2011)(Republished with the kind permission […]

http://www.fanconihope.org/families-and-affected-individuals/research-for-families/the-role-of-fanconi-anemiabrca-genes-in-zebrafish-sex-determination/

Guidance for Professionals

Guidance for ENT Specialists Head and neck squamous cell carcinoma (HNSCC) is a significant threat for people with FA, regardless of bone marrow transplantation status. Not only is the incidence of HNSCC considerably higher than in the general population (500-700 times higher), patients with FA present with these types of cancers at a younger age […]

http://www.fanconihope.org/clinical-network/guidance-for-professionals/

Fanconi Hope Affiliations

Fanconi Hope is affiliated in various ways to a number of organisations: British Society for Gene Therapy (BSGT)  The aim of the British Society for Gene Therapy is to accelerate scientific progress and promote ethical and efficient transfer of gene- and cell-based technologies from the laboratory into the clinic. Gene and cell therapy is an area where […]

http://www.fanconihope.org/giving-and-fundraising/fanconi-hope-affiliations/

And a Big Thank You to …

… all those who have made private donations to the Charity and to the following for their magnificent fundraising activities:-  (Apologies to other 2014 fundraisers, I will catch up with the list soon!) HMS Excellent,  Portsmouth for adopting us as their charity for 2013-2014  and presenting us with a cheque for £3513 (Jun14) (See Navy News Article) […]

http://www.fanconihope.org/giving-and-fundraising/and-a-big-thank-you-to/

Fundraising Resources

The following information may be of help. If you would like to take advantage of any of these materials please contact Bob Dalgleish Press Coverage: You may wish to contact the Press to publicise your event. This Media Fact Sheet about Fanconi Anaemia and Fanconi Hope will give them some background information to go with […]

http://www.fanconihope.org/giving-and-fundraising/resources/

About Fanconi Anaemia

What is Fanconi Anaemia? FA is a rare, cancer-predisposing disorder affecting about 150 or more families in the UK (the true extent is unknown) manifested by: A variable presence of congenital anomalies in up to 70% of cases (e.g., thumb and kidney abnormalities) Progressive bone marrow failure in childhood usually leading to haematopoietic stem cell […]

http://www.fanconihope.org/families-and-affected-individuals/about-fanconi-anaemia/

Fanconi Anaemia

Fanconi Anaemia is a rare autosomal recessive cancer predisposing disorder affecting about 150 or more families in the UK (the true extent is unknown) manifested by: (1) a variable presence of congenital anomalies in up to 70% (e.g., thumb and kidney abnormalities); (2) progressive bone marrow failure in childhood usually leading to haematopoietic stem cell transplantation […]

http://www.fanconihope.org/clinical-network/fanconi-anaemia/
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