Links
UK and Ireland Clinical, Research and Health Organisations
- British Society of Haematology
- British Society of Human Genetics
- Clinical Genetics Society
- Clinical Molecular Genetics Society
- Association of Genetic Nurses and Counsellors
- National Cancer Research Institute
- UK Cancer Genetics Group
- Irish Society of Human Genetics
- British Society for Gene Therapy
- British Association of Plastic Reconstructive and Aesthetic Surgeons – Find a Surgeon
- Human Fertilisation and Embryology Authority – Preimplantation Genetic Diagnosis
Registries
- UK: The Anthony Nolan Trust/Bone Donor Marrow Registry
- UK: The National Blood Bank
- UK: National Blood Bank Bone Marrow Donor Registry
- UK: The NHS Cord Blood Bank
- USA: International Fanconi Anemia Registry
International Fanconi Groups
- Australia: Fanconi Anaemia Australia
- Austria: Fanconi Anaemia Support Group
- Canada: The Canadian Fanconi Anemia Research Fund
- France: Association Française Maladie de Fanconi
- Germany: German Fanconi Anemia Support Group (Principal group)
- Germany : 2nd German Fanconi Anaemia Support Group
- India: REFAIN; Registry for Fanconi Anaemia in India
- Italy: Italian Association for Fanconi Anaemia Research
- Netherlands: Dutch Childhood Cancer Parent Organisation
- Spain: Spanish Fanconi Anaemia Association
- USA: Fanconi Anemia Research Fund
- USA: Fanconi Anemia Research Fund Group Bulletin Board
Other International Links
- USA: US National Cancer Institute Inherited Bone Marrow Failure Syndromes
- Eu: Orphanet Portal for rare diseases and orphan drugs (Currently you need to enter Fanconi Anemia, not Fanconi Anaemia)
- List of Gene Therapy Societies worldwide via the British Society for Gene Therapy site
