Links
UK and Ireland Clinical, Research and Health Organisations
- British Society of Haematology
- British Society of Human Genetics
- Clinical Genetics Society
- Clinical Molecular Genetics Society
- Association of Genetic Nurses and Counsellors
- National Cancer Research Institute
- UK Cancer Genetics Group
- Irish Society of Human Genetics
- British Society for Gene and Cell Therapy
- British Association of Plastic Reconstructive and Aesthetic Surgeons
- Human Fertilisation and Embryology Authority – Preimplantation Genetic Diagnosis
Registries
- UK: The Anthony Nolan Trust/Bone Donor Marrow Registry
- UK: The National Blood Bank
- UK: National Blood Bank Bone Marrow Donor Registry
- UK: The NHS Cord Blood Bank
- USA: International Fanconi Anemia Registry
- Tunisia: Tunisian Fanconi Anemia Registry (TFAR)
International Fanconi Organisations
Other International Links
- USA: US National Cancer Institute Inherited Bone Marrow Failure Syndromes
- Eu: Orphanet Portal for rare diseases and orphan drugs (Currently you need to enter Fanconi Anemia, not Fanconi Anaemia)
