Research and Trials You Can Take Part In
The pages under this section detail research studies or trials that you may be able to contribute to. They are all open to UK patients.
- Call for Participants in Study of Early Detection of Oral Cancer in FA Patients. link
- Danazol Study by Dr Helmut Hanenberg: A study by Dr Helmut Hanenberg shows that danazol improves blood counts in FA Patients. This work is ongoing and anyone using danazol is encouraged to provide regular updates on their blood counts, height and weight. link
- First Gene Therapy Trial: details to follow