Useful Links
UK Websites
Blood and Bone Marrow Donation
- The National Blood Bank Please become a blood donor
- National Blood Bank Bone Marrow Donor Registry
- The Anthony Nolan Trust/Bone Donor Marrow Registry Please contact the Anthony Nolan Trust to be added to their Bone Marrow Donor Registry and consider organising local bone marrow donor registration clinics with the support of the Anthony Nolan Trust)
- The Irish Bone Marrow Transplant Patient & Family Support Group
- The Irish Blood Transfusion Service
- Irish Bone Marrow Trust Supporting the Republic of Ireland Bone Marrow Transplant Unit at St James’ Hospital, Dublin
Health Organisations
- Human Fertilisation and Embryology Authority – Preimplantation Genetic Diagnosis
- Genetic Alliance UK. The national charity of patient organisations with a membership of over 140 charities supporting all those affected by genetic disorders.
International FA Support Organisations
- Australia: Fanconi Anaemia Australia
- Austria: Fanconi Anaemia Support Group
- Belgium: Steven’s Association Moonrise is a charity dedicated to raising money for the purpose of research into and raising awareness about Fanconi anaemia (FA) and its associated problems.
- Canada: The Canadian Fanconi Anemia Research Fund
- France: Association Française Maladie de Fanconi (Translate this page)
- Germany: German Fanconi Anemia Support Group (Principal group) (Translate this page)
- Germany : 2nd German Fanconi Anaemia Support Group (Translate this page)
- Ireland: Fanconi Anaemia Ireland, Fanconi Ireland Facebook Page
- Italy: Italian Association for Fanconi Anaemia Research (Translate this page)
- India: REFAIN; Registry for Fanconi Anaemia in India
- Netherlands: Facebook Page
- South Africa: Fanconi Anaemia South Africa
- Spain: Spanish Fanconi Anaemia Association (Translate this page)
- USA: Fanconi Anemia Research Fund Website
- USA: Fanconi Anemia Research Fund Facebook General Page
- USA Fanconi Anemia Research Fund Facebook Group Page
- USA: Fanconi Anemia Research Fund Group Bulletin Board
