Information Sheets
Information Sheets are being prepared on a number of topics. If you have suggestions for further topics please contact us
- Insurance for FA patients. Download
- Pre-implantation Genetic Diagnosis (PGD)/HLA-selection/In Vitro Fertilisation in Fanconi Anaemia. Download
- Additional vaccinations for FA affected individuals in UK & Ireland. Download
- Getting involved in promoting people to register as potential bone marrow donors. Download
- Advice on Nutritional Problems for Patients with Fanconi Anaemia. Download
- Head and Neck Cancers in Fanconi Anaemia. Download
- Fact Sheets for you to take to your Dentist and ENT Specialist
- Head and neck squamous cell carcinoma (HNSCC) is a significant threat for people with FA, regardless of bone marrow transplantation status. Not only is the incidence of HNSCC considerably higher than in the general population (500-700 times higher), patients with FA present with these types of cancers at a younger age than those without FA – the median age is 27 years. Regular screenings are critically important. (Text courtesy of Fanconi Anemia Research Fund)
- Download Fact Sheet for ENT Specialists (Fact Sheet courtesy of Fanconi Anemia Research Fund)
- Download Fact Sheet for Dentists (Fact Sheet courtesy of Fanconi Anemia Research Fund).
- About Fanconi Anaemia and the Fanconi Hope Charitable Trust (To give to the Press). Download
- Fanconi Hope Charity Information Download
If you are interested in FA research you can download a set of abstracts here. (2MB Word document). The full articles can be purchased online.
