Other European Organisations
ENERCA is an acronym for European Network for Rare and Congenital Anaemias. It started back in 2002, funded by the European Commission, with the purpose of offering an improved public health service to professional medical practitioners and patients in every aspect of rare anaemias.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 479 rare diseases patient organisations in over 45 countries. EURORDIS’ mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level, and – directly or indirectly – to fight against the impact of rare diseases on their lives.
Eurordis Newsletter: March 2012
