Facing the Future Together

The Charity

Please see posts at foot of page for the latest Charity News

Fanconi Hope is currently fundraising for further research and is launching an appeal for £50,000 to create and maintain a UK National Patient Registry, to improve patient care and facilitate research. Please help us achieve this with donations large or small.

Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-

To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e.g., in the treatment of cancers in general.

Fanconi Hope Research Grants: Fanconi Hope is pleased to announce that in collaboration with the US Fanconi Anemia Research Fund we have now provided grants totalling £62,000 to two UK research programmes. Further information can be found on our Fanconi Hope Funded Research page.

Read more about the Charity and Progress to Date

How you can helpFanconi Hope would appreciate donations and offers to fundraise on our behalfSuccessful bone marrow transplant rely on exact donor matches. We would encourage everyone to become a bone marrow donor. Please register with Anthony Nolan.

When you donate to Fanconi Hope you can be sure that the money will be spent responsibly and in ways that will benefit families affected by Fanconi Anaemia.

Our 3 parent trustees and 3 clinician trustees all give their time voluntarily
Every penny of the funds raised that we apply to research in the UK does exactly that. We have no management overhead associated with this as we have an arrangement in place with our US parent organisation, the Fanconi Anaemia Research Fund, to make use of their 15 strong scientific advisory board (which includes international representation) to identify, monitor and review appropriate research projects.
We have been very fortunate in securing the services of the Duchess of Devonshire as our Patron to oversee the work of the Charity.

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You can help us achieve our aims by:

Donating directly to Fanconi Hope:

Online: Single payments or direct debits. Pay by credit/debit card or Paypal. DONATE NOW. (You can also GiftAid online donations increasing their value by 28% at no extra cost to you
By Post: Please send cheques payable to ‘Fanconi Hope’ to Fanconi Hope, PO Box 905, Southsea, Hants, UK PO1 9JG. By using this donation form you can GiftAid your donation, increasing its value by 28% at no extra cost to you.
By Standing Order: Please complete this Standing Order Form, send the top half to us at Fanconi Hope, PO Box 905, Southsea, Hants, UK PO1 9JG and take or send the bottom half to your bank.
By Text: Text FANC01 followed by £1, £2, £3, £4, £5 or £10 to 70070 to donate to Fanconi Hope and make a difference today. So to donate £10, just text FANC01 £10 to 70070. And you can GiftAid your donation to add 25%
Need help? Contact Bob Dalgleish by e-mail , call 0845 271 2811 or write to Fanconi Hope at PO Box 905, Southsea, Hants, UK PO1 9JG

Using online shops that will donate money to Fanconi Hope as you use them
Applying for a Charity Credit Card
Organising fund raising events for Fanconi Hope
Offering your skills and services to Fanconi Hope
Encouraging friends and relations to join the Anthony Nolan bone marrow registry. Register here
Supporting our current fundraisers

Our fundraisers have already raised thousands of pounds for Fanconi Hope through walking, running, cycling, jumble sales, social events and more. Please join us.

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