Facing the Future Together
The Charity
Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
- To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care.
- To promote awareness and understanding of Fanconi Anaemia among affected families, the medical profession, and the general public.
- To encourage translational research which may directly benefit Fanconi Anaemia affected children and their families.
- To encourage research in the area of Fanconi Anaemia that may have benefit for the general public, e.g., in the treatment of cancers in general.
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NEW FUNDRAISING TARGET OF £100,000
Fanconi Hope is pleased to announce that in collaboration with the US Fanconi Anemia Research Fund we have provided a grant of £30,000 for the first UK research programme relating to the use of stem cell technology in conjunction with gene therapy to cure Fanconi Anaemia; ‘Using iPSC technology to understand early haematopoietic development in Fanconi Anaemia patients’
Fanconi Hope’s research grant of £30,000 is now funding the first phase of the work, and we have set ourselves a target of raising a further £100,000 for the remaining phases. Further information can be found on our Fanconi Hope Funded Research page
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You can help us achieve these aims by:
- Donating directly to Fanconi Hope:
- Online: Single payments or direct debits. Pay by credit/debit card or Paypal. DONATE NOW. (You can also GiftAid online donations increasing their value by 28% at no extra cost to you)
- By Post: Please send cheques payable to ‘Fanconi Hope’ to Fanconi Hope, PO Box 905, Southsea, Hants, UK PO1 9JG. By using this donation form you can GiftAid your donation, increasing its value by 28% at no extra cost to you.
- By Standing Order: Please complete this Standing Order Form, send the top half to us at Fanconi Hope, PO Box 905, Southsea, Hants, UK PO1 9JG and take or send the bottom half to your bank.
- Need help? Contact Bob Dalgleish by e-mail , call 0845 271 2811 or write to Fanconi Hope at PO Box 905, Southsea, Hants, UK PO1 9JG
- Using online shops that will donate money to Fanconi Hope as you use them
- Applying for a Charity Credit Card
- Organising fund raising events for Fanconi Hope
- Offering your skills and services to Fanconi Hope
- Arranging a Local Bone Marrow Donor Registration Clinic
- Supporting our current fundraisers
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Our fundraisers have a lready raised thousands of pounds for Fanconi Hope in our first year through walking, running, cycling, jumble sales, social events and more. Please join us.
Charity News
First Fanconi Hope Research Grant Awarded
Fanconi Hope is pleased to announce that in collaboration with the US Fanconi Anemia Research Fund we have provided our first grant to a UK research programme. This important research programme, entitled ‘Using iPSC technology to understand early haematopoietic development in Fanconi Anaemia patients’, relates to the use of stem cell technology and gene therapy as a [...]
January 16, 2010
Christmas Fundraising Event
Christine Westmoreland will be fundraising for Fanconi Hope at the Christmas Evenings at Floralands Garden Villlage near Nottingham on 2nd and 10th December, 5.30 -8.30pm. She will be delighted to see anyone who can make it there.
Floralands, Catfoot Lane, Lambley, NG4 4QL
November 24, 2009
Fundraising Update
Your fundraising efforts in recent months have been magnificent, bringing in over £10,000!
Here are some of the larger donations in August and September:
Our Patron, the Duchess of Devonshire nominated us as her charity for the Chatsworth Country Fair, raising £4000.
Jules Sanders bravely performed on the Plinth in Trafalgar Square raising over £600
Val Taylor, ably assisted by Margaret [...]
October 4, 2009
