Facing the Future Together
The Charity
Please see posts at foot of page for the latest Charity News
Fanconi Hope is currently fundraising for further research and is launching an appeal for £50,000 to create and maintain a UK National Patient Registry in order to improve patient care and facilitate research. Please help us achieve this with donations large or small.
Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA:-
Fanconi Hope Research Grants: Fanconi Hope is pleased to announce that in collaboration with the US Fanconi Anemia Research Fund we have now provided grants totalling £62,000 to two UK research programmes. Further information can be found on our Fanconi Hope Funded Research page. Read more about the Charity and Progress to Date |
How you can help:
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When you donate to Fanconi Hope you can be sure that the money will be spent responsibly and in ways that will benefit families affected by Fanconi Anaemia.
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You can help us achieve our aims by: |
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Donating directly to Fanconi Hope: |
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Helping us raise money in other ways
- Using online shops that will donate money to Fanconi Hope as you use them
- Applying for a Charity Credit Card
- Organising fund raising events for Fanconi Hope
Helping out in other ways
- Offering your skills and services to Fanconi Hope
- Encouraging friends and relations to join the Anthony Nolan bone marrow registry. Register here
- Supporting our current fundraisers
Our fundraisers have already raised thousands of pounds for Fanconi Hope through walking, running, cycling, jumble sales, social events and more. Please join us.
Charity News
Barry Shiels’ Family and Friends Run the Belfast Marathon in his Memory this Weekend
Barry Shiels lost his battle against Fanconi Anaemia earlier this year - but his family and friends are to carry out a wish on his behalf by running the Belfast marathon on Monday 7th May. This is the biggest team we have had running in a Marathon for Fanconi Hope to date, so best of luck to all. [...]
May 2, 2012
Help Wanted for Fanconi Hope Stand at Chatsworth International Horse Trials
If you would like to help out on the Fanconi Hope Stand at the Chatsworth International Horse Trials on Sat/Sun 12th/13th May and/or would like to contribute cakes, biscuits, sweets or other items (which should be new) please contact us. At our stand (a 3m by 3m gazebo) we will also be having a balloon raffle (rather [...]
April 29, 2012
Fanconi Hope is Nominated Charity at Chatsworth International Horse Trials
Chatsworth International Horse Trials 11-13th May 2012, Chatsworth, Derbyshire Thanks to our patron, The Duchess of Devonshire, Fanconi Hope is this year’s nominated charity for the Chatsworth International Horse Trials. Fanconi Hope will have a stand there and will be hosting a balloon race throughout the weekend to raise funds. More details
April 9, 2012
Thanks to all our recent fundraisers!
You can see forthcoming fundraising events on our website here. If you would like further information on any of the events please contact us.Thanks to all those who have made direct donations recently and to the following for their help in raising funds for Fanconi Hope through their various fundraising events:- Around 20 members of [...]
Fanconi Hope on the Race Track!
Martin O’Connell Racing will be carrying the Fanconi Hope logo during the 2012 season’s racing. Martin races in Historic Sports Car Races and last season along with Jason Minshaw shared victory in two fabulous E-type Challenge races at the HSCC’s Oulton Park Gold Cup meeting (28/29 August 2011).
Fanconi Hope co-sponsors British and European Gene Therapy Collaborative Congress 2011
Reflecting the importance of gene therapy to future treatment improvements for Fanconi Anaemia, Fanconi Hope contributed sponsorship for this year’s combined European and British Societies for Gene Therapy Collaborative Congress in Brighton on Oct 27-31, 2011. Professor Lord Winston can be seen in the accompanying photo presenting the keynote speech against the backdrop of sponsors [...]
November 22, 2011
Team Leighton Charity Night, Glasgow 25th Nov.
Team Leighton are holding a Charity Night on the 25 th of Nov. @ 543 club in Dalmuir, Glasgow, in aid of Fanconi Hope. Tickets £5, everyone welcome. Please: If anyone has any raffle prizes these would be especially welcomed. Contact for further details.
October 19, 2011
Emmerdale the Most-watched Soap on Wednesday
According to ‘Digital Spy’, Emmerdale was the most-watched soap on Wednesday evening as Sarah’s illness storyline gathered pace, according to overnight figures. An hour-long episode of the ITV1 show pulled in 6.6m (31.8%) from 7pm, as Debbie and Andy were informed that their young daughter has Fanconi Anaemia, a rare genetic disease. more The number [...]
October 8, 2011
Fanconi Hope Supports British & European Societies for Gene Therapy Congress
ESGCT and BSGT Collaborative Congress 2011, Brighton UK Fanconi Hope is contribution sponsorship of £1000 for this important gathering of the European Gene Therapy community in Brighton from 20th to 23rd October 2011. As well as having a Fanconi Hope stand in the exhibition area on the 20th we will be providing literature which will be distributed to all [...]
October 7, 2011
2nd International FA Gene Therapy Working Group Meeting – Oct 11
The International FA Gene Therapy Working Group will re-convene at the 23rd Fanconi Anemia Research Fund (FARF) Annual Scientific Symposium in Barcelona in October, at a meeting co-sponsored by FARF, Fanconi Hope and the Spanish group, the Centre for Biomedical Network Research on Rare Diseases (CIBERER). A report on the first meeting by Prof Jakub Tolar published [...]
October 1, 2011
