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Fundraising Resources

The following information may be of help. If you would like to take advantage of any of these materials please contact Bob Dalgleish Press Coverage: You may wish to contact the Press to publicise your event. This Media Fact Sheet about Fanconi Anaemia and Fanconi Hope will give them some background information to go with […]

http://www.fanconihope.org/giving-and-fundraising/resources/

Charity Trustees

The charity trustees include 3  parent representatives and 3 clinicians in the UK Fanconi Anaemia Clinical Network. Thomas Carroll, doctor Chairman  Consultant Neurosurgeon and FA parent Sheffield Bob Dalgleish, hospital Secretary FA parent Portsmouth Louise Parry, Treasurer FA parent Manchester Dr Mary Morgan,  Clinician Trustee Consultant Paediatric Haematologist Southampton Dr Alan Gilliespie,  Clinician Trustee Consultant […]

http://www.fanconihope.org/giving-and-fundraising/charity-trustees/

About Fanconi Anaemia

What is Fanconi Anaemia? FA is a rare, cancer-predisposing disorder affecting about 150 or more families in the UK (the true extent is unknown) manifested by: A variable presence of congenital anomalies in up to 70% of cases (e.g., thumb and kidney abnormalities) Progressive bone marrow failure in childhood usually leading to haematopoietic stem cell […]

http://www.fanconihope.org/families-and-affected-individuals/about-fanconi-anaemia/

The Charity

Please see posts at foot of page for the latest Charity News Fanconi Hope is currently fundraising for further research, in particular for a 3 year Study into the Long term Effects of Fanconi Anaemia to be led by Manchester University  and funded by Fanconi Hope.  This study will fund a UK FA Coordinator who will create and maintain […]

http://www.fanconihope.org/giving-and-fundraising/

Families and Affected Individuals

Please see posts at foot of page for the latest news for families and affected individuals. We aim to provide support for families and individuals affected by FA by providing information and also guidance as to where additional support and other services may be found. We now have a UK FA Coordinator, Beth Lee, to help you in dealing […]

http://www.fanconihope.org/families-and-affected-individuals/

Fanconi Anaemia

Fanconi Anaemia is a rare autosomal recessive cancer predisposing disorder affecting about 150 or more families in the UK (the true extent is unknown) manifested by: (1) a variable presence of congenital anomalies in up to 70% (e.g., thumb and kidney abnormalities); (2) progressive bone marrow failure in childhood usually leading to haematopoietic stem cell transplantation […]

http://www.fanconihope.org/clinical-network/fanconi-anaemia/

Clinicians and Researchers

Please see posts at foot of page for the latest Clinician/Researcher News UK and Ireland Fanconi Anaemia Clinical Network Contact details of the current FA Clinical Network .  The map shows the locations of the current membership. If you would like to join, please contact us UK Fanconi Anaemia Research Network The researchers detailed in this […]

http://www.fanconihope.org/clinical-network/

Home

The UK & Ireland Fanconi Anaemia Family/Clinical Network is a recently formed group of NHS clinicians who are responsible nationally for providing treatment for the rare genetic disorder Fanconi Anaemia.  The Clinical Network also includes FA family/parent representation.  The NHS clinicians involved are throughout the UK and include paediatric haematologists, sick clinical geneticists, view head & neck […]

http://www.fanconihope.org/home/
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