Search Results

Bone Marrow Donation

Anthony Nolan Bone Marrow Registry. Now it’s simple – just register online.  All you be asked for is some medical information and a small saliva sample. ANTHONY NOLAN are particularly looking to recruit more men aged between 18 and 30. The following should help to banish the myth that donating bone marrow is a painful experience:- This is an Anthony Nolan video […]

http://www.fanconihope.org/families-and-affected-individuals/bone-marrow-donation/

Fundraising Resources

The following information may be of help. If you would like to take advantage of any of these materials please contact Bob Dalgleish Press Coverage: You may wish to contact the Press to publicise your event. This Media Fact Sheet about Fanconi Anaemia and Fanconi Hope will give them some background information to go with […]

http://www.fanconihope.org/giving-and-fundraising/resources/

Information Sheets

Fanconi Hope Information Sheets Information Sheets are being prepared by Fanconi Hope on a number of topics. If you have suggestions for further topics please contact us. Insurance for people with FA. Download. Updated Apr 14. Pre-implantation Genetic Diagnosis (PGD)/HLA-selection/In Vitro Fertilisation in Fanconi Anaemia.  Download Additional vaccinations for FA affected individuals in UK & […]

http://www.fanconihope.org/families-and-affected-individuals/information-sheets/

About Fanconi Anaemia

What is Fanconi Anaemia? FA is a rare, cancer-predisposing disorder affecting about 150 or more families in the UK (the true extent is unknown) manifested by: A variable presence of congenital anomalies in up to 70% of cases (e.g., thumb and kidney abnormalities) Progressive bone marrow failure in childhood usually leading to haematopoietic stem cell […]

http://www.fanconihope.org/families-and-affected-individuals/about-fanconi-anaemia/

Families and Affected Individuals

Please see posts at foot of page for the latest news for families and affected individuals. We aim to provide support for families and individuals affected by FA by providing information and also guidance as to where additional support and other services may be found. We now have a UK FA Coordinator, Beth Lee, to help you in dealing […]

http://www.fanconihope.org/families-and-affected-individuals/

Fanconi Anaemia

Fanconi Anaemia is a rare autosomal recessive cancer predisposing disorder affecting about 150 or more families in the UK (the true extent is unknown) manifested by: (1) a variable presence of congenital anomalies in up to 70% (e.g., thumb and kidney abnormalities); (2) progressive bone marrow failure in childhood usually leading to haematopoietic stem cell transplantation […]

http://www.fanconihope.org/clinical-network/fanconi-anaemia/

Clinicians and Researchers

Please see posts at foot of page for the latest Clinician/Researcher News UK and Ireland Fanconi Anaemia Clinical Network Contact details of the current FA Clinical Network .  The map shows the locations of the current membership. If you would like to join, please contact us UK Fanconi Anaemia Research Network The researchers detailed in this […]

http://www.fanconihope.org/clinical-network/
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