Links for Clinicians and Researchers

Links for Clinicians and Researchers UK and Ireland Clinical, Research and Health Organisations British Society of Haematology British Society for Genetic Medicine Clinical Genetics Society Association of Genetic Nurses and CounsellorsNational Cancer Research Institute UK Cancer Genetics Group Irish Society of Human Genetics British Society for Gene and Cell Therapy British Association of…

Fanconi Hope Announces Appointment of New UK FA Coordinator

Beth Lee - Fanconi Hope FA Coordinator Fanconi Hope has taken an important step forward in support of improved care for the Fanconi Anaemia (FA) community in the UK by funding a long term study through Manchester University called: “Observational study for long term health implications of individuals affected by Fanconi Anaemia”. One of the first activities in this study, which started in…

Our UK FA Liaison and Research Coordinator

Our UK FA Liaison and Research Coordinator Fanconi Hope has taken an important step forward in support of improved care for the Fanconi Anaemia (FA) community in the UK by funding a long term study through Manchester University called: “Observational study for long term health implications of individuals affected by Fanconi Anaemia”. Ask Beth – our Fanconi Hope FA Coordinator One of the…

About Us

More about Fanconi Hope Fanconi Hope is a registered national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA: To support a UK Fanconi Anaemia National Registry so as to ensure Fanconi Anaemia affected children and their families are kept track of and provided with the best care. To promote awareness and understanding of Fanconi…